Skip to main content

Move along, nothing to see here

I've been on the increased dose of Tolvaptan / Jynarque for the past week (up to 60/30 from 45/15) and I'm happy to admit...

It's been a non-event.

Water consumption has remained pretty much the same.

No real change in thirst.

One bathroom break per night.

Manageable.

I see my nephrologist in two weeks so depending on what she thinks, I may be moving up to the Big Leagues - 90/30 - soon.

Comments

Most Read

A drop isn't always a decline

As I prep for today's nephrology appointment, I thought this might be a good visual for people if they're just entering the world of PKD.  This is my kidney function over the past year and a half and  I've classified the data points into periods of stability and decline.  The key takeaway from this is that a single data point doesn't really carry much information - you have to look at the trend over time. And sometimes you have to wait a bit to see what that trend actually is. Did I freak out when I hit that period of decline late last summer (2nd decline period)? Without a doubt! But was the decline as bad as I initially thought? No (but it still sucked). And after the initial shock (and denial and grief) wore off, I was okay. And when my levels dropped to 23 at the beginning of this year, I'd been through enough to stop and ask myself what was going on. In this instance, I'd been put on a diuretic for five days to take care of some water retention....