Skip to main content

All meds, all the time

As much as I hate to admit it, my life now revolves around my meds. Don't get me wrong, I've been on other maintenance drugs for a LOONG time. But somehow the timing of when I took them never seemed to be top of mind to me.

No more. Not now that I'm on Tolvaptan.

Late doses mean that my sleep suffers. Lack of water means my kidneys suffer.
So I started using an app - Medisafe - to help me keep on track.

It allows you to interface with your pharmacy (CVS, Walgreens, Rite Aid) or clinic and download your current prescriptions and dosages. All you need to do is schedule each one, select an alarm sound and you're good to go.


When the time comes, an alarm sounds and a screen like the one above shows up on your phone. Take your dose, click on the Take button (showing as 'Un-Take' sine I actually took my dose) and go on with your day.

The app stores a record of when you took everything so you can talk to your doctor about schedule compliance.

Comments

Most Read

A drop isn't always a decline

As I prep for today's nephrology appointment, I thought this might be a good visual for people if they're just entering the world of PKD.  This is my kidney function over the past year and a half and  I've classified the data points into periods of stability and decline.  The key takeaway from this is that a single data point doesn't really carry much information - you have to look at the trend over time. And sometimes you have to wait a bit to see what that trend actually is. Did I freak out when I hit that period of decline late last summer (2nd decline period)? Without a doubt! But was the decline as bad as I initially thought? No (but it still sucked). And after the initial shock (and denial and grief) wore off, I was okay. And when my levels dropped to 23 at the beginning of this year, I'd been through enough to stop and ask myself what was going on. In this instance, I'd been put on a diuretic for five days to take care of some water retention....