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It's getting real...

I looked at my phone messages on Monday night and was excited to find a call from the Mayo Clinic.

Would they tell me that I had to wait for further deterioration before I could be evaluated for transplant?

Or would they tell me to make the drive to Rochester to go through a battery of tests and meetings?

It turned out to be the latter. Yay! They're going to evaluate me for transplant in April!

Wait a minute. They're going to evaluate me for transplant... Crap. As they say in the movies (?), shit's getting real.

I'm trying to stay positive, telling myself that this way I'll be able to get my name on the transplant list as soon as my eGFR hits 20. I'll be able to maximize my time on the list.

But every so often, the positivity slips and the fear and anxiety appear. And the questions. All the questions...

Will I be able to keep working? Will I be able to afford this? How will this affect my retirement? Will I be able to retire early? How will I pay for health care if I retire early? Would I even be able to qualify for insurance? Will I have to go on disability? Can I find a live donor? Will I have to wait for a deceased donor? How much time will it take to find a Type O kidney? Will it be in good condition? And while I wait, dialysis?!? Can I get used to needles? Can I do this?!?

But then I take a deep breath. I tell myself there's nothing I can do about most of this. And I take another deep breath. And I live my life. And wait.

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Round 2 deja vu

My doctor decided to keep me at the initial 45/15 mg dose for another months so I'm anticipating a similar water consumption. Here are the first four of seven (?) or eight (?) five gallon bottles of water. My local grocery store has a water bottle fill station for an extremely reasonable 39 cents a gallon. The frugal side of me thinks I should invest in reusable water bottles and take advantage of the savings. The lazy side of me thinks that it'd be a total hassle to wash the bottles, keep bugs and dust from falling into them before I'm able to refill them, remember to take them with me to the store (I can't even remember those reusable shopping bags) and then stockpile a source of bottle caps. It's just so much easier to buy these recyclable five gallon bottles. Lazy beats frugal.

Winner Winner!

Mon Apr 1 2019 - Just look what showed up on my doorstep (okay, it was actually a FedEx driver) by 930am this morning! Super, super exciting!!! I had that box open and my first dose taken in no time at all. My biggest concern now is whether taking it at 930am is going to mess with my sleep. They say that it's best to take the first dose as early as possibly (my plan is 6am) so you can take the second dose as early as possible (8 hours later at 2am) so you're not waking up all night having to go to the bathroom. As it is, I won't be taking my second dose until 530pm. Ugh. Fingers crossed. In the meantime, here's what everything looked like when I opened the box (yes, I took time to actually photograph this momentous moment). After the inspection of the non-med part of the box, I set my bottle of water next to me (I was working from home) and I waited. And I waited. How long would it take before I needed to go to the bathroom?!? Turned out to take 45 min...