Skip to main content

It's time

Lord knows I've delayed this as long as I could. But it's time.

Time to get in shape and to lose weight.

Did you know that centers have weight/BMI limits as part of their transplant qualifications?

They do. 

In some instances, they'll require weight loss before they'll add you to the active transplant list.

And if you attempt to lose weight (or not) and don't, they may even recommend bariatric surgery.

That seems a bit extreme... to have an invasive surgery so you can have another invasive surgery.

Additionally, there's some controversy about how much weight to lose. Studies show that heavier dialysis patients have better transplant outcomes than dialysis patients with lower body weights.

So what's the happy medium? How do you satisfy the transplant centers while assuring that your transplant odds are as high as they can be?

Honestly, I think it's just using some common sense and making an honest effort.

My goal is to bring my weight into what I consider a healthy, maintainable range for me - this factors in my preferences, lifestyle and body type. Technically, the CDC will still classify me as 'Overweight' but I'm okay with that. Anything lower will give me that gaunt, "she's lost too much weight/is she sick?" look.

With an eGFR of the high 20's, I still have a while before my weight truly matters. So I'll thoughtfully be addressing my eating & exercise habits (or lack thereof) and focusing on developing my coping skills (so stress doesn't equal ice cream binge). No "lose it all in two weeks" mentality for me.

I'm confident I'll get there in time.



Comments

Most Read

Artificial kidney

I have a somewhat fanciful thought of what an artificial kidney would look like. I see a device that is shaped like a kidney (of course) but is completely clear so you could see all the blood circulating through it. Granted, once it's implanted no one's going to see it but - hey - it's my vision. The closest picture I can find of what's in my mind's eye is this image. Granted, that's a picture of a kidney-shaped paper weight and it's a little cloudy, but I know you can picture it too. My, oh my. My imagination is not even close to reality. According to a post from the American Journal of Kidney Diseases , there are three new approaches being explored right now: the automated wearable artificial kidney ('AWAK'), the wearable artificial kidney ('WAK') and the implantable artificial kidney ('IAK'). My money's on the IAK and you'll understand why once I show you the concept pictures of the other two. The AWAK is said to ...

Oops I did it again

Oops! I advocated for myself again. After getting the results from my latest CBC (Complete Blood Count), my doctor put me on daily Vitamin D-3 to increase levels but did not recommend iron supplementation for (what I consider) borderline anemia. I was glad to hear low Vitamin D might be adding to increased fatigue but I still wondered... I have a history of low Ferritin levels, despite sufficient RBC/hemoglobin counts. So... I made an appointment with an independent lab and had them check my iron levels. Results? My Ferritin level is at 51, well within the 'normal' range of 100-232. Still, I wondered... So I did further research. My low Ferritin level was originally discovered when I was diagnosed with Restless Leg Syndrome (but I may actually have Periodic Limb Movement Disorder). So I looked up literature regarding recommended Ferritin levels given RLS/PLMD. Huh. Treatment recommendations are that Ferritin be no lower than 75 for people with RLS/PLMD. Bingo! ...

No denying it

So this happened today. Despite being on Jynarque for over a year. Despite increasing the dosage to 90/30. Despite watching my sodium, drinking gallons of water and losing weight. My creatinine levels continue to trend upwards and my eGFR continues to trend down. It's now at 21. Big sigh. Discussions are underway to determine dialysis modality and whether I can do it at home. A fistula consult with the surgeon has been ordered. And I still wait for the transplant evaluation with Mayo (it was rescheduled due to Covid). So if you know anyone who would be interested in helping out a Type O girl with a donated kidney, please send them my way. Take care.