Skip to main content

It's time

Lord knows I've delayed this as long as I could. But it's time.

Time to get in shape and to lose weight.

Did you know that centers have weight/BMI limits as part of their transplant qualifications?

They do. 

In some instances, they'll require weight loss before they'll add you to the active transplant list.

And if you attempt to lose weight (or not) and don't, they may even recommend bariatric surgery.

That seems a bit extreme... to have an invasive surgery so you can have another invasive surgery.

Additionally, there's some controversy about how much weight to lose. Studies show that heavier dialysis patients have better transplant outcomes than dialysis patients with lower body weights.

So what's the happy medium? How do you satisfy the transplant centers while assuring that your transplant odds are as high as they can be?

Honestly, I think it's just using some common sense and making an honest effort.

My goal is to bring my weight into what I consider a healthy, maintainable range for me - this factors in my preferences, lifestyle and body type. Technically, the CDC will still classify me as 'Overweight' but I'm okay with that. Anything lower will give me that gaunt, "she's lost too much weight/is she sick?" look.

With an eGFR of the high 20's, I still have a while before my weight truly matters. So I'll thoughtfully be addressing my eating & exercise habits (or lack thereof) and focusing on developing my coping skills (so stress doesn't equal ice cream binge). No "lose it all in two weeks" mentality for me.

I'm confident I'll get there in time.



Comments

Most Read

Artificial kidney

I have a somewhat fanciful thought of what an artificial kidney would look like. I see a device that is shaped like a kidney (of course) but is completely clear so you could see all the blood circulating through it. Granted, once it's implanted no one's going to see it but - hey - it's my vision. The closest picture I can find of what's in my mind's eye is this image. Granted, that's a picture of a kidney-shaped paper weight and it's a little cloudy, but I know you can picture it too. My, oh my. My imagination is not even close to reality. According to a post from the American Journal of Kidney Diseases , there are three new approaches being explored right now: the automated wearable artificial kidney ('AWAK'), the wearable artificial kidney ('WAK') and the implantable artificial kidney ('IAK'). My money's on the IAK and you'll understand why once I show you the concept pictures of the other two. The AWAK is said to ...

One more for the books

I had the quarterly appointment with my nephrologist the other day - one of the "bonuses" of being on Jynarque is that they monitor, monitor, monitor the heck out of you. And I'm happy to say that all my levels are stable - eGFR (we've decided to call me early Stage 4 since I've been teetering between 3b and 4 for the past 5-7 months), liver enzymes, calcium, phosphates, glucose, potassium, sodium, Vitamin D... Oops! Then there's that nasty Intact Parathyroid test. TOTALLY different story... Not only is it higher than last year - and increase of 75% - but now I'm outside the normal range. Sound the alarms! But wait. What exactly is the parathyroid? What does it do? And is this normal for a Stage 4 PKD patient? The parathyroid glands (four of them) are about the size of a grain of rice - or a pea, depends on your source - and they are located on your thyroid. They release a hormone (PTH) that regulates the amount of calcium in your blood ...

Live in the moment

I'm a thinker, a what if-er. I analyze things to within an inch of their life. Live in the moment? What's that? Nothing is straight forward with PKD. The unpredictable nature makes it impossible to create solid plans. And the decisions you think you can make are often conflicting. Case in point, Tolvaptan. Taking it should slow down kidney decline, delaying my need for dialysis and/or transplant. Yet the older I am before I need a transplant, the higher my Expected Post Transplant Survival score is (a lower score means greater survival rate and, if 20 or less, a high quality kidney). But I'm really hoping to stave off dialysis/transplant until there's a viable implantable artificial kidney. See what I mean? I guess the bottom line is that I have to have faith and trust that whatever happens was meant to be. What are the words from the Serenity Prayer? God grant me the SERENITY to accept the thing I cannot change, the COURAGE to change the things I can and ...

And so it begins

At my last appointment, the nephrologist actually offered to give me a referral for transplant. And then a week later I got THIS in the mail from my insurance company. Crap! It's getting real now. If something like that doesn't take the wind out of your sails, I don't know what will. Granted I had let my doctor know a couple of months ago that I wanted to be screened and ready to go as soon as my eGFR hit 20. Did I think it would be this year? No. My estimates were three years from now. Yet the combination of the four point eGFR drop + the transplant referral leads me to believe that my DOCTOR believes I should hit 20 within the year. I don't think I'm going to be able to last until the artificial kidney comes out. :-(