Skip to main content

Still clinging to my old normal

Last weekend I attempted to hold on to my old normal.

I have three Rhodesian Ridgebacks and one of the things that I enjoy is watching them run (and compete) in a dog sport called lure coursing. The event was about three and a half hours away in Iowa.

So I packed up the camper, aka the most expensive dog kennel you'll ever purchase, and we made our way south. Uneventfully so.

I set up camp, got the pups walked, fed, settled and then allowed myself to collapse. What a lot of work.

But I slept well and woke up refreshed and ready for the day.

I tried to be prepared. I brought four gallons of drinking water, along with a water dispenser pump. I had a 10 pound bag of ice to keep my drinking water COLD. I had every intention to stay well hydrated. I thought I was. But when you're outside all day in the sun and wind sometimes it's difficult to tell.

Epic fail.

By the end of the next day I was so tired, drained and dehydrated that I wanted to cry (which was crazy since my younger boy won Best of Breed against nine other Ridgebacks). I went back to the camper, CRASHED and took a two hour nap.

Decision made. Old normal be damned. New normal - at least for last weekend - was cutting the weekend short and returning home first thing the next morning, eight hours early.

Did it feel like defeat? Yes.

Was it the best thing I could do to support my health and well-being? Definitely.

The only thing I can do is learn from the experience.

First of all, when I think I'm drinking enough water, DRINK MORE! I think next time I'm going to measure out two gallons of water at the beginning of the day and make sure that that's the MINIMUM I down. A fellow member of the Polycystic Cysterhood said that she drinks at least two additional liters of water a day during the warmer months of the year. Done.

Next, I think it's okay to start out with the expectation that I  might not be able to run the dogs both days of the trial. Enter the first day, note how I'm feeling and then either gate enter, act spectator or pack up early on the second day. And feel good with my decision.

Yet the after effects of the weekend continue. Possibly due to the Tolvaptan dehydration. Maybe because I stood outside all day in the blowing pollen-filled wind. Or the resulting fatigue? Regardless, now I have a summer cold.

Boo.

Hydrate. Hydrate. Hydrate.

Comments

Most Read

Artificial kidney

I have a somewhat fanciful thought of what an artificial kidney would look like. I see a device that is shaped like a kidney (of course) but is completely clear so you could see all the blood circulating through it. Granted, once it's implanted no one's going to see it but - hey - it's my vision. The closest picture I can find of what's in my mind's eye is this image. Granted, that's a picture of a kidney-shaped paper weight and it's a little cloudy, but I know you can picture it too. My, oh my. My imagination is not even close to reality. According to a post from the American Journal of Kidney Diseases , there are three new approaches being explored right now: the automated wearable artificial kidney ('AWAK'), the wearable artificial kidney ('WAK') and the implantable artificial kidney ('IAK'). My money's on the IAK and you'll understand why once I show you the concept pictures of the other two. The AWAK is said to ...

Oops I did it again

Oops! I advocated for myself again. After getting the results from my latest CBC (Complete Blood Count), my doctor put me on daily Vitamin D-3 to increase levels but did not recommend iron supplementation for (what I consider) borderline anemia. I was glad to hear low Vitamin D might be adding to increased fatigue but I still wondered... I have a history of low Ferritin levels, despite sufficient RBC/hemoglobin counts. So... I made an appointment with an independent lab and had them check my iron levels. Results? My Ferritin level is at 51, well within the 'normal' range of 100-232. Still, I wondered... So I did further research. My low Ferritin level was originally discovered when I was diagnosed with Restless Leg Syndrome (but I may actually have Periodic Limb Movement Disorder). So I looked up literature regarding recommended Ferritin levels given RLS/PLMD. Huh. Treatment recommendations are that Ferritin be no lower than 75 for people with RLS/PLMD. Bingo! ...

No denying it

So this happened today. Despite being on Jynarque for over a year. Despite increasing the dosage to 90/30. Despite watching my sodium, drinking gallons of water and losing weight. My creatinine levels continue to trend upwards and my eGFR continues to trend down. It's now at 21. Big sigh. Discussions are underway to determine dialysis modality and whether I can do it at home. A fistula consult with the surgeon has been ordered. And I still wait for the transplant evaluation with Mayo (it was rescheduled due to Covid). So if you know anyone who would be interested in helping out a Type O girl with a donated kidney, please send them my way. Take care.