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My how things change

Remember that AWESOME welcome box I received from Avella with my first shipment of Tolvaptan?

One time spiff.

This is how shipments #2+ come packaged.

I guess there wasn't enough margin in the monthly $13,000 wholesale price for 'Congrats on Making it to Month 2' packaging. ;-)

Still SO grateful to have the opportunity to stave off end stage with this medication. Maybe they'll have the artificial kidney by the time I reach the dialysis stage.

Here's hoping. :-D

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A drop isn't always a decline

As I prep for today's nephrology appointment, I thought this might be a good visual for people if they're just entering the world of PKD.  This is my kidney function over the past year and a half and  I've classified the data points into periods of stability and decline.  The key takeaway from this is that a single data point doesn't really carry much information - you have to look at the trend over time. And sometimes you have to wait a bit to see what that trend actually is. Did I freak out when I hit that period of decline late last summer (2nd decline period)? Without a doubt! But was the decline as bad as I initially thought? No (but it still sucked). And after the initial shock (and denial and grief) wore off, I was okay. And when my levels dropped to 23 at the beginning of this year, I'd been through enough to stop and ask myself what was going on. In this instance, I'd been put on a diuretic for five days to take care of some water retention....